We are committed to protecting and respecting your privacy. This policy sets out the basis on which we will process any personal data that we collect from you, or that you provide to us. Please read the following carefully to understand our practices regarding your personal data.
We encourage you to read the whole notice. Alternatively, if you wish to read about specific privacy practices that interest you, please click on the relevant links below.
We are the National Institute of Health Research Biomedical Research Centre at Moorfields Eye Hospital NHS Foundation Trust and UCL Institute of Ophthalmology (‘Moorfields BRC’, ‘us’, ‘our’ or ‘we’). Of the twenty national Biomedical Research Centre in the United Kingdom, we are the only one dedicated to vision.\
This is our main privacy notice that applies to all of our activities. Please read this in conjunction with any additional privacy information that we provide to you. This notice may be updated from time to time. This version is dated 12 September 2018.
Personal information is information that relates to you or allows us to identify you. This includes obvious things like your name, address and telephone number but can also include less obvious things like analysis of your use of our websites.
There are different types of personal information. Additional restrictions are placed on the use of the following types of information under data protection law:
Special categories of personal information: these include information about your health, racial or ethnic origin, political opinions, religious or philosophical beliefs and trade union membership, your genetic data and biometric data, and information concerning your sex life or sexual orientation; and
Criminal convictions information: this is information relating to your criminal convictions and offences.
For the purposes of data protection law, both University College London (UCL) and Moorfields Eye Hospital NHS Foundation Trust (Moorfields) act as separate ‘controllers’ in respect of the personal information processed by Moorfields BRC.
This means that UCL and Moorfields are responsible for ensuring compliance with relevant data protection laws when your personal information is processed by Moorfields BRC.
If you have any queries about the use of your personal data by Moorfields BRC, please contact us using the following details:
By email: email@example.com
By telephone: +44 (0)20 7608 6949
In writing: NIHR Moorfields BRC, 2/12 Wolfson Building, UCL Institute of Ophthalmology, 11-43 Bath Street, London, EC1V 9EL
You may also contact UCL and/or Moorfields using the details set out below.
You can contact UCL:
By telephone: +44 (0)20 7679 2000
In writing: University College London, Gower Street, London, WC1E 6BT
UCL has appointed a data protection officer to oversee data protection compliance. You can contact UCL’s data protection officer:
By email: firstname.lastname@example.org
In writing: Data Protection Officer, University College London, Gower Street, London WC1E 6BT
You can contact Moorfields:
In writing: Moorfields Eye Hospital NHS Foundation Trust, 162 City Road, London, EC1V 2PD
Moorfields has also appointed a data protection officer to oversee data protection compliance. You can contact the Moorfields data protection officer:
By email: email@example.com
By telephone: +44(0)20 7253 3411
In writing: Data Protection Officer, Information Governance Department, Moorfields Eye Hospital NHS Foundation Trust, 162 City Road, London, EC1V 2PD
We only collect personal information about you in connection with the operation and activities of Moorfields BRC.
We will hold information about you if:
You are a member of our Research Community (see below for further information on this);
You take part in our discussion groups or events, receive our updates, make enquires to or visit our offices or websites;
You provide services to us (or you represent a company which provides services to us); or
You represent a regulator or government body which has dealings with us
You receive financial support or remunerations from the Moorfields BRC and/or the National Institute of Heather Research
The types of information we process about you may include:
Types of Personal Information
Name, address (including proof of address), other contact details (e.g. email and telephone numbers), gender, marital status, date and place of birth, nationality, employer, job title, and family details, including their relationship to you
Special categories of personal information
Information about your health, racial or ethnic origin
Information which can be traced back to you, such as an IP address, a website tracking code or electronic images of you
We collect your personal information from various sources, including personal information provided to us directly by you, information provided by your employer or information that we collect about you (e.g. where you visit our website).
The source will depend on why we are collecting your personal information.
In this section we set out in more detail:
The main purposes for which we use your personal information; and
The legal bases upon which we are using your personal information.
This is a database where members of the public (18 years and over) can register to be contacted about opportunities to be involved in research.
To become a Research Community Contributor you must complete, sign and date our Research Community registration form and return it to us. Research Community registration forms are available directly from the Moorfields BRC team at our public facing events and in some instances via email or by post.
The Research Community registration form collects the following information:
There is no required information in order to join the Research Community and you are free to provide whatever information you feel comfortable with. However, the more information you provide, the more we can inform our approaches to you about activities that are likely to be the most relevant/of interest to you.
Contributors will be invited to take part in opportunities which include:
Decisions to contact people are based on:
Participation in our Research Community is based on your consent.
Discussion groups and events: general
If you wish to attend our discussion groups or events, we ask you to provide us with a limited amount of information. We use this information in order to arrange your attendance at our seminars and events.
Seminars and events: filming and photography
For all events organised by us you will be asked to complete, sign and date a filming and photography release form on arrival or to bring a completed form with you on the day.
The filming and photography release form collects the following information:
If you do not wish to have your image captured, then you do not need to sign a filming and photography release form and you do not need to give a reason. Instead you will be identified to those conducting filming and photography as not wanting your image to be captured.
While we respect the right of each individual's privacy there may be some instances (e.g. background/group shots) were you may inadvertently appear. Should you feel that you are identifiable then you are invited to contact us and ask us to stop using the image.
Public images may be captured for use in the following circumstances:
We have a legitimate interest in arranging your attendance at our events.
For some images we may seek consent, on a use by use basis, when the image:
Visitors to our websites
We may collect information automatically about your computer, including where available your IP address, operating system and browser type, for system administration purposes.
We use information held about you to ensure that content from our site is presented in the most effective manner for you.
We have a legitimate interest in providing to you the facilities on our websites that you have requested and in understanding how our websites are used and the relatively popularity of the content on our websites.
Responding to queries
If you have requested information or assistance from us, we will contact you either by e-mail by post in response to your request.
We have a legitimate interest in providing information and assistance to individuals who contact us.
We collect information about you in connection with your provision of services to us or your position as a representative of a provider of services to us.
We have a legitimate interest in contacting and dealing with individuals involved in providing services to us.
Where we do process your personal information based on your consent, you have the right to withdraw your consent at any time. To withdraw your consent please contact us using the contact details set out in section 5 above.
In respect of update emails, please click on the unsubscribe link in the relevant email you receive from us.
Members of our Research Community may contact us using the contact details set out in section 5 and ask to be removed from the Research Community at any time and without giving a reason.
It is possible to withdraw consent for us to use any image of you, at any time and without giving a reason. We will then delete the image from our library to prevent any further use. We may not be able to guarantee that in the future a different image of you may be used. However, it is again possible to withdraw consent for its use, at any time and without giving a reason.
Electronic images: the image will be removed from all platforms owned and operated by the Moorfields BRC and we will take responsibility for ensuring its removal from any platforms owned and operated by our partners; and
Print images: where possible we will withdraw the image from any further future circulation, but we may not be able to recall the image in instances where it has already been distributed as part of printed materials.
We do not use your information for commercial gain. We do not disclose personal information about you to advertisers, or sell your information to any other organisation for marketing purposes.
We do share your information in the following circumstances:
Where we use external companies to organise or host events for us, we may need to provide these service providers with your relevant information; and
We share your personal information with other third parties, such as relevant regulators, where we are required to do so to comply with legal or regulatory requirements.
In each case where we share your information with one of our service providers, the service provider is required to keep it safe and secure. They are also not permitted to use your information for their own purposes.
Please note that there may be instances where a third party has copied/or linked to your image without our knowledge. You have the right to contact any third party you perceive as using your image without your consent and request that they discontinue such use. In such circumstances, you are also welcome to contact the Moorfields BRC and we will do what we can to assist, up to and including removing the content from our own platforms.
We take security issues seriously. We implement appropriate steps to help maintain the security of our information systems and processes and prevent the accidental destruction, loss or unauthorised disclosure of the personal information we process.
We do not use profiling (where an electronic system uses personal information to try and predict something about you) or automated decision making (where an electronic system uses personal information to make a decision about you without human intervention).
We keep your personal information for as long as is necessary for the purposes for which it was collected. We will delete your personal information where you request this, subject to compliance with any legal or regulatory requirements which oblige us to keep it for a longer period. [Note: please confirm whether there is a relevant data retention policy in place.] At the moment the BRC doesn’t have its own retention policy. It would make’s sense for us to align with UCL policy here. For events we are fine to delete all contact databases following a reasonable period of time after the event. With regards to our Research Community the maximum period of retention would be preferred.
Your personal data is not transferred outside the European Economic Area.
Under certain conditions, you may have the right to require us to:
Provide you with further details on the use we make of your personal information;
Provide you with a copy of the personal information we hold about you;
Update any inaccuracies in the personal information we hold about you;
Delete any of your personal information that we no longer have a lawful ground to use;
Where processing is based on consent, stop that particular processing by withdrawing your consent;
Object to any processing based on our legitimate interests unless our reasons for undertaking that processing outweigh any prejudice to your data protection rights;
Restrict how we use your personal information whilst a complaint is being investigated; or
Transfer your personal information to a third party in a standardised machine-readable format.
In certain circumstances, we may need to restrict your rights in order to safeguard the public interest (e.g. the prevention or detection of crime).
We are obliged to keep your personal information accurate and up to date. Please help us to do this by advising us of any changes to your personal information.
If you are not satisfied with our use of your personal information or our response to any request by you to exercise your rights, or if you think that we have breached any relevant data protection laws, then you have the right to complain to the authority that supervises our processing of your personal information or, where you are based in the EU, the data protection authority in your country.
The UK data protection regulator, the Information Commissioner's Office (ICO), is our lead data protection supervisory authority. Details of the ICO can be found at https://ico.org.uk
Quality of information - always check the information
The NIHR Moorfields Biomedical Research Centre makes every effort to ensure the quality of the information available on this website and updates the information regularly. Before relying on the information on this site, users should carefully evaluate its accuracy, completeness and relevance for their purposes, and should obtain any appropriate professional advice relevant to their particular circumstances. The NIHR Moorfields Biomedical Research Centre cannot guarantee and assumes no legal liability or responsibility for the accuracy and completeness of the information.
Links to external websites
This website contains links to other websites which are external to the NIHR Moorfields Biomedical Research Centre website. The NIHR Moorfields Biomedical Research Centre takes reasonable care in selecting and linking websites. It is the responsibility of the user to make their own decisions about the accuracy and correctness of information contained in linked external websites.
Linkage to external websites should not be taken to be an endorsement or a recommendation of any information, material or content linked from or to this website. Users of links provided by this website are responsible for being aware of which organisation is hosting the website they visit.
The NIHR Moorfields Biomedical Research Centre makes every effort to check and test material for viruses. However, it is recommended that you run an anti-virus program on all material downloaded from the internet. We cannot accept any responsibility for any loss disruption or damage to your data or your computer system which may occur while using material derived from this website.
The NIHR Moorfields Biomedical Research Centre cannot guarantee uninterrupted access to this website, or the sites to which it links. We accept not responsibility for any damages arising from the loss or use of this information.
These terms and conditions shall be governed by and constructed in accordance with the laws of England and Wales. Any dispute arising under these terms and conditions shall be subject to the exclusive jurisdiction of the courts of England and Wales.
Last updated 20th January 2015.
Content on this website is subject to The NIHR Moorfields Biomedical Research Centre copyright protection unless otherwise stated.
Where copyright applies, visitors can download material for private research, study or in-house use only. Visitors must not copy, distribute, or publish any material from this website. Any other use of copyright material requires the permission of The NIHR Moorfields Biomedical Research Centre.
All rights reserved. These materials (including without limitation all articles, text, images, logos etc.) are © Copyright 2010. NIHR Moorfields Biomedical Research Centre. All rights reserved. The NIHR Moorfields Biomedical Research Centre endeavors to ensure that the information on this website is correct but does not accept any liability for error or omission.
Last updated 20th January 2015.