Blepharospasm Day 2015

Blepharospasm Day

Saturday 21st November 2015

About the event

The NIHR Moorfields BRC hosted an event for patients, relatives, friends and healthcare professionals to learn and ask about Blepharospasm. This is a condition which is characterised by uncontrolled contractions of the muscles around the eye.

At this event, attendees had the opportunity to:

  • meet researchers and clinicians who specialise in this field and ask them questions;
  • discuss and share experiences of living with blepharospasm;
  • find out how to get involved in research, patient groups and fundraising opportunities;
  • hear about and discuss current research, how research could be used and how to influence future research priorities.
     

The Blepharospasm Day volunteer team

Presentations

  • 1. Introduction - Daniel Ezra

    Welcome talk – Daniel Ezra

  • 2. What is Blepharospasm?

    What is Blepharospasm? - Dr Marie-Helene Marion

  • 3. Medical treatments for blepharospasm

    Medical treatments for blepharospasm - Marie-Helene Marion

  • 4. The psychological impact of dystonia

    The psychological impact of dystonia - Professor Stan Newman

  • 5. Surgery for Blepharospasm

    Surgery for Blepharospasm - Dr Paul Cauchi

  • 6. Patient Discussion Q&A

    Patient  Discussion Q&A with Daniel Ezra, Marie- Helene Marion, Paul Cauchi, Stan Newman and Doreen Khan Lim

  • 7. Patient Panel

    The patient panel explored their individual experiences of being diagnosed; the impact of medication and surgery; and the effect that Blepharospasm can have on employment and relationships.

  • 8. Experiences From a Rare Disease Perspective

    Experiences From a Rare Disease Perspective - Miss Rea Mattocks

  • 9. Helping Set The Research Agenda

    Helping Set The Research Agenda - Dr Dolores Conroy

  • 10. What is Research?

    What is Research? - Dr Catey Bunce

  • 11. Blepharospasm survey: key questions for research

    Dr Andi Skilton

    - Blepharospasm survey: key questions for research
    - Developing a Research Community

  • 12. Thoughts & Experiences

    Attendees' Thoughts & Experiences - Dr Andi Skilton and Dr Catey Bunce

  • 13. Blepharospasm Day 2015 - Moorfields Eye Charity

    Moorfields Eye Charity - Hannah Bentley

  • 14. Feedback from the interactive posters

    Feedback from the interactive posters - Marie-Helene Marion, Nickolas Koutroumanos, Fariha Shafi

Gallery

Exhibition roomDaniel Ezra Introduction

 

 

 

 

 

 

 

Attendee questions and answersAttendee activity participation

 

 

 

 

 

 

 

Exhibition standOne of the many research posters on display

 

 

 

 

 

 

 

Thoughts and experiences gathered from the audience

The exhibition space in action!
 
 
 
 
 
 
 
 
 
 
 
 
 

Sponsors and support

NIHR Moorfields Biomedical Research Centre